What is your story?: Exploring narratives of patients with cancer using visual tools, literary texts, and art
This dissertation focused on the application of visual methods, literature, and art to support patients with cancer. Having cancer impacts people in many ways, from physical discomfort to the loss of life goals. Therefore, it can be described as an experience of contingency. Contingency means that everything could have been different in life, that what happened was not impossible, but also not necessary. When an experience of contingency arises, patients need to make meaning of their life with cancer and integrate the diagnosis and prognosis in their life story. In other words, they need to adjust their life story. To be able to support patients with cancer with such adjustments, insight into their experiences is needed first. However, talking about what it means to have cancer can be difficult. For this reason, the present dissertation had two objectives. First, we explored the potential of using visual tools to gain insight into the story of patients with cancer. Second, we examined how patients may adapt their story using literature and art-based interventions. We adopted two visual tools to gain insight into the stories of patients with cancer: rich pictures (RPs) and photovoice. RPs are visual representations in the form of a drawing, that attempt to capture an individual’s perspective of a difficult or complex situation. In photovoice, participants are invited to make photographs to document meaningful aspects of their experience. We investigated two examples of interventions in which art is used to adapt the story of patients with cancer: art therapy and co-creative art-making.
https://pure.uva.nl/ws/files/88683891/Thesis.pdf
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https://dare.uva.nl/personal/pure/en/publications/what-is-your-story